Development of the American College of Rheumatology Patient-Reported Outcome Quality Measures for Systemic Lupus Erythematosus.
Patricia P KatzClaire E H BarberAli Duarte GarciaShivani GargWambui MachuaWendy RodgersYesenia Santiago-CasasLisa G SuterChristie M BartelsRebecca GraingerPublished in: Arthritis care & research (2024)
Expert workgroup members and patient partners recommend that clinicians assess depression and physical function at least once yearly in all people with SLE. Additional PROMs addressing cognition and fatigue can also be assessed. Next steps are to incorporate PROM-based quality measures into the ACR The Rheumatology Informatics System for Effectiveness registry.
Keyphrases
- patient reported outcomes
- systemic lupus erythematosus
- disease activity
- juvenile idiopathic arthritis
- sleep quality
- randomized controlled trial
- systematic review
- quality improvement
- depressive symptoms
- palliative care
- rheumatoid arthritis
- clinical practice
- mild cognitive impairment
- multiple sclerosis
- electronic health record
- machine learning
- hiv infected