Governance of a Learning Health Care System for Oncology: Patient Recommendations.
Rochelle D JonesChris D KrenzKent A GriffithRebecca SpenceAngela R BradburyRaymond Gene De VriesSarah T HawleyRobin T ZonSage BolteNavid SadeghiRichard L SchilskyReshma JagsiPublished in: JCO oncology practice (2020)
If patients are to trust and support LHS endeavors, their concerns about for-profit users must be addressed. The ethical implementation of such systems should consist of patient representation on governing boards, transparency, and strict oversight of for-profit users.