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Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review.

Gemma DavyKaty L UnwinJosephine BarbaroCheryl Dissanayake
Published in: Autism : the international journal of research and practice (2022)
We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them.
Keyphrases
  • physical activity
  • palliative care
  • mental health
  • young adults
  • healthcare
  • systematic review
  • randomized controlled trial
  • health information