Identifying the psychosocial predictors of ultraviolet exposure to the face in patients with xeroderma pigmentosum: a study of the behavioural factors affecting clinical outcomes in this genetic disease.
Robert P E SarkanySam NortonMartha CanfieldMyfanwy MorganLesley FosterKirby SainsburyVera Araujo-SoaresHans Christian WulfJohn WeinmanJessica WalburnPublished in: Journal of medical genetics (2022)
We have identified factors contributing to poor photoprotection in XP. Identifying these potentially reversible psychosocial features has enabled us to design an intervention to improve photoprotection in patients with XP, aiming to prevent skin and eye cancers in these patients.