The facioscapulohumeral muscular dystrophy Rasch-built overall disability scale (FSHD-RODS).
Karlien MulTatiana HamadehCorinne G C HorlingsRabi TawilJeffrey M StatlandSabrina SacconiAlastair J CorbettNicol C VoermansCatharina G FaberBaziel G M van EngelenIngemar S J MerkiesPublished in: European journal of neurology (2021)
The FSHD-RODS is a disease-specific interval measure suitable for detecting activity and participation restrictions in patients with FSHD with good item/person reliability and validity scores. The use of this scale is recommended in the near future, to determine the functional deterioration slope in FSHD per year as a preparation for the upcoming clinical intervention trials in FSHD.