A Collaborative Approach: Care Staff and Families Working Together to Safeguard the Quality of Life of Residents Living With Advanced Dementia.
Sian Ellen HughesRobert T WoodsKatherine Algar-SkaifeHannah JelleyCatrin Hedd JonesPublished in: Journal of central nervous system disease (2019)
Participants were able to identify factors of residents' well-being in residents living with advanced dementia. Family members who visited daily saw themselves working collaboratively with care staff to maintain the quality of life of their relatives and engage in proxy decision making. Regarding human rights, the emphasis was on avoiding abuse, rather than promoting well-being.