Advance care planning and palliative care in ACHD: the healthcare providers' perspective.
Jill Marie SteinerErwin N OechslinGruschen VeldtmanCraig S BrobergKaren StoutJames KirkpatrickAdrienne H KovacsPublished in: Cardiology in the young (2020)
Providers noted high value in advance directives yet were themselves less likely to initiate advance care planning or refer to palliative care. This raises the critical questions of when, how, and by whom discussion of these important matters should be initiated and how best to support ACHD providers in these endeavours.