Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.

Amanda M GutierrezJill O RobinsonSimon M OutramHadley S SmithStephanie A KraftKatherine E DonohueBarbara B BieseckerKyle B BrothersFlavia ChenBenyam HailuLucia A HindorffHannah HobanRebecca L HsuSara J KnightBarbara A KoenigKatie L LewisKristen Hassmiller LichJulianne M O'DanielSonia OkuyamaGail E TomlinsonMargaret WaltzBenjamin S WilfondSara L AckermanMary A Majumder

Published in: Journal of clinical and translational science (2021)

Our findings support adopting a broad conceptualization of access to care encompassing multiple dimensions, using mixed methods to study access issues, and investing in innovative improvement strategies. This conceptualization may inform clinical translation of other cutting-edge technologies and contribute to the promotion of equitable, effective, and efficient access to genomic medicine.

Keyphrases

healthcare
palliative care
quality improvement
copy number
mental health
pain management
randomized controlled trial
gene expression
clinical trial
dna methylation
affordable care act