Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study.

Jeffrey P Krischer Peter F Cronholm Cristina M Burroughs Carol A McAlear Renee Borchin Ebony Easley Trocon Davis Joyce Kullman Simon Carette Nader A Khalidi Curry L Koening Carol A Langford Paul A Monach Larry W Moreland Christian Pagnoux Ulrich Specks Antoine G Sreih Steven R Ytterberg Peter A Merkelnull null

Published in: Journal of medical Internet research (2017)

PC recruitment was substantially less successful than that achieved by the CoE approach. However, the PC approach was good at confirming eligibility and was as acceptable to providers and as understandable to patients as the CoE approach. The PC approach should be evaluated in other clinical settings to get a better sense of its potential.

Keyphrases

clinical trial
end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
case report
prognostic factors
randomized controlled trial
study protocol
phase iii