A service-oriented approach to clinical trial recruitment for dementia and brain health: Methods and case examples of MyAlliance for Brain Health.
Eric D VidoniEmma SwinfordKelli BartonJaime Perales-PuchaltC Michelle NiedensTina LewandowskiTiffany Schwasinger-SchmidtJill PeltzerJoEllen WurthJannette Berkley-PattonRyan A TownleyW Todd MooreAshley R ShawMickeal N KeyErica AndradeMelissa RobinsonSusan SpragueAiden BondurantDebra BrookJennifer FreundJeffrey M BurnsPublished in: Alzheimer's & dementia (New York, N. Y.) (2024)
MyAlliance led to a significant increase in the representation of underrepresented racial and ethnic groups and individuals from rural areas.The service-oriented approach facilitated long-term community engagement and trust-building, extending partnerships between an academic medical center and community organizations.While effective, MyAlliance required substantial financial investment, with costs including infrastructure development, staff support, partner organization compensation, and promotional activities, underscoring the resource-intensive nature of inclusive research recruitment efforts.
Keyphrases
- mental health
- healthcare
- clinical trial
- health information
- public health
- resting state
- white matter
- social media
- functional connectivity
- cerebral ischemia
- randomized controlled trial
- cognitive impairment
- health promotion
- open label
- climate change
- risk assessment
- study protocol
- quality improvement
- phase ii
- subarachnoid hemorrhage
- human immunodeficiency virus
- blood brain barrier
- african american
- brain injury
- antiretroviral therapy