Health-related quality of life outcome measures for children surviving critical care: a scoping review.
Elizabeth Y KillienLaura L LoftisJonna D ClarkJennifer A MuszynskiBrian J RissmillerMarcy N SingletonBenjamin R WhiteJerry J ZimmermanAline B MadduxNeethi P PintoEricka L FinkR Scott WatsonMcKenna SmithMelissa RingwoodRobert J Grahamnull nullPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)
HRQL assessment in pediatric critical care research has been centered around four instruments, though existing literature is limited by minimal longitudinal follow-up and infrequent assessment of baseline HRQL.