Concise review of end of life and palliative care in neuromuscular pathologies: still a long pathway ahead.
Maria Luisa de CandiaAntonietta CoppolaGualtiero Ermando RomanoGiovanna Elisiana CarpagnanoPaola PierucciPublished in: Acta myologica : myopathies and cardiomyopathies : official journal of the Mediterranean Society of Myology (2024)
Although there is no cure, the advent of supportive interventions including multidisciplinary care (MDC) has improved all the aspects of dying for patients affected by NMD; nevertheless there still a long pathway ahead.