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Perspectives of children and adolescents with cerebral palsy about involvement as research partners: a qualitative study.

C CavensChristine ImmsGabrielle DrakeN GarrityMargaret Wallen
Published in: Disability and rehabilitation (2021)
This study identified perspectives of children and adolescents on their involvement as research partners, and considerations for researchers to facilitate involvement of children and adolescents with cerebral palsy as partners in research.IMPLICATIONS FOR REHABILITATIONThe commitment in healthcare to client-centred practice requires that consumers, including children and young people with cerebral palsy, have opportunities to influence the direction of research which impacts them.Children and young people with cerebral palsy are interested in research partnerships and motivated to be involved in various areas of research.Effective research partnerships with younger populations can be facilitated by researchers acknowledging a child or young person's expertise, and employing strategies relating to open communication, flexibility and support.
Keyphrases
  • cerebral palsy
  • healthcare
  • young adults
  • middle aged
  • primary care
  • global health
  • mental health
  • minimally invasive
  • public health
  • quality improvement
  • hepatitis c virus