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The parental perspective of thalassaemia in Bangladesh: lack of knowledge, regret, and barriers.

Mohammad Sorowar HossainMd Mahbub HasanMary PetrouPaul TelferAbdullah Al Mosabbir
Published in: Orphanet journal of rare diseases (2021)
This study suggests poor parental knowledge regarding thalassaemia including prenatal diagnosis and the challenges faced while caring for their children. These findings would be of paramount importance in planning and devising effective prevention and intervention strategies in Bangladesh as well as other countries with similar sociocultural setting.
Keyphrases
  • healthcare
  • randomized controlled trial
  • young adults