Sickle Cell Health Awareness, Perspectives, and Experiences (SHAPE) survey: Perspectives of adolescent and adult patients, caregivers, and healthcare professionals on the burden of sickle cell disease.
Mariane De MontalembertAlan R AndersonFernando Ferreira CostaBaba Psalm Duniya InusaOmima MustafaJoachim B KunzBiba TingaElvie IngoliJohn JamesRegina HartfieldAnne BeaubrunBelinda LarteyIsaac OdamePublished in: European journal of haematology (2024)
The multifaceted challenges identified using the SHAPE survey highlight the global need to improve both patient and caregiver QOL.