Common data model for sickle cell disease surveillance: considerations and implications.

Matthew P SmeltzerSarah L ReevesWilliam O CooperBrandon K AttellJohn J StrouseClifford M TakemotoJulie KanterKrista LattaAllison P PlaxcoRobert L DavisDaniel HatchCamila ReyesKevin DombkowskiAngela SnyderSusan PaulukonisAshima SinghMariam Kayle

Published in: JAMIA open (2023)

We successfully implemented a pilot SCDC common informatics infrastructure to strengthen our distributed data network and provide a blueprint for similar initiatives in other rare diseases.

Keyphrases

sickle cell disease
electronic health record
big data
machine learning
randomized controlled trial
artificial intelligence
data analysis