Content analysis of patient support groups related to myositis on Facebook.
Aiman Perween AfsarShounak GhoshRenil Sinu TitusKaren ChengArundati A KanawalaPeter KerkhofJessica DayLatika GuptaPublished in: Clinical rheumatology (2024)
Our observations indicate that patients with myositis seek information on the condition online, and the multimedia nature of content presentation significantly influences engagement. These digital forums serve as valuable platforms for fostering connections among diverse individuals, providing a perceived safe space for sharing their personal experiences and varied perspectives, and potentially mitigating social isolation. Key Points • Patient support groups on myositis are a key source of support and information for patients. • Public posts with multimedia content garner the most engagement. • The majority of posts are personal in nature, with a smaller proportion of content providing news or information.
Keyphrases
- social media
- health information
- mental health
- case report
- interstitial lung disease
- end stage renal disease
- healthcare
- ejection fraction
- newly diagnosed
- myasthenia gravis
- chronic kidney disease
- systemic sclerosis
- peritoneal dialysis
- depressive symptoms
- physical activity
- social support
- prognostic factors
- emergency department
- rheumatoid arthritis
- patient reported outcomes