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Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life.

Kelli I StajduharMelissa GiesbrechtAshley MollisonNaheed DosaniRyan McNeil
Published in: Palliative medicine (2020)
Findings offer novel insight into the experiences of family caregiving in the context of structural vulnerability. Engaging with family caregivers emerged as a missing and necessary palliative care practice, confirming the need to re-evaluate palliative care models and acknowledge issues of trust to create culturally relevant approaches for successful interventions. More research examining how 'family' is defined in this context is needed.
Keyphrases
  • palliative care
  • advanced cancer
  • mental health
  • healthcare
  • climate change
  • primary care
  • physical activity
  • health information
  • social media
  • chronic pain
  • genetic diversity