Feasibility, acceptability, and limited efficacy of health system-led familial risk notification: protocol for a mixed-methods evaluation.
Paula R BlasiAaron ScrolMelissa L AndersonMarlaine Figueroa GrayBrooks TiffanyStephanie M FullertonJames D RalstonKathleen A LeppigNora B HenriksonPublished in: Pilot and feasibility studies (2022)
Our findings will provide new, foundational evidence for the creation of US-based familial notification systems that directly address logistical and ethical challenges while prioritizing the preferences of patients and families.