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Gastrostomy tube feeding in epidermolysis bullosa: A multi-center assessment of caregiver satisfaction.

Elana P KleinmanAntonia Reimer-TaschenbreckerCourtney N HallerAmy S PallerMoise L LevyLawrence F Eichenfield
Published in: Pediatric dermatology (2022)
The survey demonstrates a high rate of satisfaction for G-tube use among caregivers of patients with EB across varying ages and household settings. The free-text responses provide unique insight into caregiver's individual experiences regarding G-tubes to be considered for future studies.
Keyphrases
  • palliative care
  • mental health
  • current status
  • cross sectional
  • smoking cessation
  • case control