Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects.

Clifton O BinghamSusan J BartlettPeter A MerkelThelma J MielenzPaul A PilkonisLauren EdmundsonEmily MooreRajeev K Sabharwal

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2016)

The PCORI pilot projects demonstrated that PROMIS can be successfully used to conduct research that will help patients make decisions about their care. Interest in PCOR continues to grow and the lessons learned from these projects about the use of PROMIS will be helpful to investigators. Given the numerous benefits of PROMIS, implementing this tool in research and care will hopefully lead to significant progress in measuring health outcomes that are meaningful and relevant to all stakeholders.

Keyphrases

patient reported outcomes
quality improvement
healthcare
palliative care
end stage renal disease
study protocol
mental health
chronic kidney disease
pain management
randomized controlled trial
ejection fraction
clinical trial
peritoneal dialysis
prognostic factors
affordable care act