Supporting parental caregivers of children living with life-threatening or life-limiting illnesses: A Delphi study.
Nicole R SmithJill M G BallyLorraine HoltslanderShelley PeacockShelley SpurrHeather Hodgson-VidenChristopher MpofuMarcelline ZimmerPublished in: Journal for specialists in pediatric nursing : JSPN (2018)
This study identified a wide variety of psychosocial needs for parental caregivers. Results also offered direction for a theory-based hope intervention while highlighting the need for additional research in this area. These results will provide the foundation for a booklet parents can work through in their journey of caring for a child with a life-limiting or life-threatening illness.