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Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research.

James D HarrisonWendy G AndersonMaureen FaganEdmondo RobinsonJeffrey SchnipperGina SymczakCatherine HansonMartha B CarnieJim BantaSherry ChenJonathan DuongCelene WongAndrew D Auerbach
Published in: The patient (2019)
Barriers to engaging PFAC members in research include patients' negative perceptions of research and researchers' lack of training. Building community between PFAC members and researchers is a foundation for partnerships. There are shared training opportunities for PFAC members and researchers to build skills about research and research engagement.
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