Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research.
James D HarrisonWendy G AndersonMaureen FaganEdmondo RobinsonJeffrey SchnipperGina SymczakCatherine HansonMartha B CarnieJim BantaSherry ChenJonathan DuongCelene WongAndrew D AuerbachPublished in: The patient (2019)
Barriers to engaging PFAC members in research include patients' negative perceptions of research and researchers' lack of training. Building community between PFAC members and researchers is a foundation for partnerships. There are shared training opportunities for PFAC members and researchers to build skills about research and research engagement.