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Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives.

Jennifer W MackErin R CurrieVincent MartelloJordan A GittzusAsisa IsackLauren FisherLisa C LindleyStéphanie Gilbertson WhiteEric RoelandMarie Bakitas
Published in: Journal of the National Comprehensive Cancer Network : JNCCN (2021)
Bereaved family caregivers of AYAs with cancer noted a need for timely prognostic communication, emotional support to enhance acceptance of a poor prognosis, and care delivery models that would support both life-prolonging and palliative goals of care. Work to address these challenges offers the potential to improve the quality of EoL care for young people with cancer.
Keyphrases
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  • palliative care
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  • squamous cell
  • long non coding rna
  • pain management
  • squamous cell carcinoma
  • lymph node metastasis
  • affordable care act
  • human health