The pervasive influence of systems of power on transition readiness for adult care in sickle cell disease: A qualitative study.
Kemar V PrussienHaley L FaustLori E CrosbyKim Smith-WhitleyLamia P BarakatLisa A SchwartzPublished in: Pediatric blood & cancer (2024)
Systems of power are prevalent with respect to transition barriers for AYA with SCD and their supports. Structural, institutional, and individual factors with potential to reduce the influence of systems of power should be further identified and targeted for intervention.