Drivers of caregiver impact in Duchenne muscular dystrophy: a cohort study.

Carolyn Emily SchwartzRoland B StarkKatrina BorowiecBruce D Rapkin

Published in: Journal of patient-reported outcomes (2022)

A more comprehensive 'story' about DMD caregiver impact involves life stress, environmental mastery, COVID-specific variables, and cognitive and behavioral factors. Implications are discussed for coaching interventions to support DMD caregivers.

Keyphrases

duchenne muscular dystrophy
muscular dystrophy
coronavirus disease
sars cov
palliative care
physical activity