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Exploring the Impact of Epidermolysis Bullosa on Parents and Caregivers: A Cross-Cultural Validation of the Epidermolysis Bullosa Burden of Disease Questionnaire.

Ashjan AlheggiAseel AlfahhadAbrar BukhariChristine Bodemer
Published in: Clinical, cosmetic and investigational dermatology (2024)
This study highlights the need for support services for parents caring for patients with EB.
Keyphrases
  • healthcare
  • primary care
  • palliative care
  • mental health
  • cross sectional
  • psychometric properties
  • health insurance