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Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public.

Saskia C SandersonSabrina A SuckielMicol ZweigErwin P BöttingerEthylin Wang JabsLynne D Richardson
Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2015)
The educational animated video, "Whole Genome Sequencing and You," was well received by this sample of online-survey respondents. Further work is needed to evaluate its utility as an aid to informed decision making about WGS in other populations.Genet Med 18 5, 501-512.
Keyphrases
  • end stage renal disease
  • decision making
  • ejection fraction
  • chronic kidney disease
  • healthcare
  • prognostic factors
  • peritoneal dialysis
  • mental health
  • social media
  • cross sectional
  • emergency department
  • adverse drug