Current Challenges of Using Patient-Level Claims and Electronic Health Record Data for the Longitudinal Evaluation of Duchenne Muscular Dystrophy Outcomes.
Katherine L GoochIvana AudhyaKristen Ricchetti-MastersonShelagh M SzaboPublished in: Advances in therapy (2024)
Insurance claims and EHR-linked open claims data are of limited utility for holistically evaluating the progression and burden of DMD in individual patients.
Keyphrases
- electronic health record
- duchenne muscular dystrophy
- health insurance
- clinical decision support
- adverse drug
- end stage renal disease
- ejection fraction
- newly diagnosed
- affordable care act
- muscular dystrophy
- case report
- healthcare
- type diabetes
- cross sectional
- risk factors
- patient reported outcomes
- patient reported
- weight loss