Lived experiences of palliative care among people living with HIV/AIDS: a qualitative study from Bihar, India.
Sara Jaye SanfordPragya KumarRaman MahajanAmit HarshanaKathryn RichardsonLaura Moreto-PlanasSakib BurzaPublished in: BMJ open (2020)
Despite expected high inpatient fatality rates, PLHA in Bihar lack access to palliative care services. PLHA receiving end-of-life care in hospitals should have a separate dedicated area, with adequate psychosocial counselling and activities to prevent social isolation. Healthcare providers should make concerted efforts to inquire, understand and adapt their messaging on prognosis and end-of-life care based on patients' preferences.