Biobank for craniosynostosis and faciocraniosynostosis, rare pediatric congenital craniofacial disorders: a study protocol.

Lucia De MartinoPeppino MirabelliLucia QuagliettaUrsula Pia FerraraStefania PicarielloDomenico Vincenzo De GennaroMarco AielloGiovanni SmaldoneFerdinando AlibertiPietro SpennatoDaniele De BrasiEugenio CovelliGiuseppe Cinalli

Published in: Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery (2024)

The activation of a CRS biobank will provide an opportunity to improve translational research on CRS and to share its benefits with the scientific community and patients and their families.

Keyphrases

end stage renal disease
study protocol
ejection fraction
randomized controlled trial
newly diagnosed
chronic kidney disease
healthcare
mental health
prognostic factors
open label