Parent-proxy pediatric CMT quality of life outcome measure: Validation of the Italian version.

Federica Rachele DantiEmanuela PaglianoDavide PareysonMaria FoscanAlessia MarchiAlessia FeoliFabio BruschiGiuseppe PiscosquitoMicheal E ShySindhu Ramchandren Isabella MoroniTong Tong Wu

Published in: Journal of the peripheral nervous system : JPNS (2024)

The Italian parent-proxy pCMT-QOL is a reliable, culturally adapted, and comparable version of the original English instrument. This questionnaire will improve the quality of the follow-up and will make it possible to monitor more accurately the severity of the disease in Italian-speaking families.

Keyphrases

psychometric properties
cross sectional
quality improvement
young adults
patient reported outcomes