Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention.
Julie AldersonMaia ThorntonMars SkaeJulie JonesNicky NicollDiana HarcourtMark WoodwardElizabeth C CrownePublished in: The journal of sexual medicine (2024)
Healthcare services must have an impact on parental ability to engage in essential communication with their children in cases such as clitoral size variation related to neonatal CAH. Improved communication skills allow parents to engage in more genuine decision-making and adapt to enduring genital reality, including possible future sexual challenges for their adult child, without resorting to burdensome strategies focused on attempts to perpetuate a benevolent ignorance.