Australian arm of the International Spinal Cord Injury (Aus-InSCI) community survey: 1. population-based design, methodology and cohort profile.
James W MiddletonMohit AroraAnnette KifleyTimothy GeraghtySamantha J BorgRuth MarshallJillian ClarkAndrew NunnAnna FerranteChristine FeketeGerold StuckiBamini GopinathAshley R CraigIan D CameronPublished in: Spinal cord (2022)
The Aus-InSCI survey made efforts to maximise coverage, avoid recruitment bias and address non-response bias. The distributed, linked and coded (re-identifiable at each custodian level) 'virtual quasi-registry' data model supports systematic cross-sectional and longitudinal research.