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Australian arm of the International Spinal Cord Injury (Aus-InSCI) community survey: 1. population-based design, methodology and cohort profile.

James W MiddletonMohit AroraAnnette KifleyTimothy GeraghtySamantha J BorgRuth MarshallJillian ClarkAndrew NunnAnna FerranteChristine FeketeGerold StuckiBamini GopinathAshley R CraigIan D Cameron
Published in: Spinal cord (2022)
The Aus-InSCI survey made efforts to maximise coverage, avoid recruitment bias and address non-response bias. The distributed, linked and coded (re-identifiable at each custodian level) 'virtual quasi-registry' data model supports systematic cross-sectional and longitudinal research.
Keyphrases
  • cross sectional
  • spinal cord injury
  • healthcare
  • mental health
  • electronic health record
  • spinal cord
  • big data
  • quality improvement
  • neuropathic pain
  • affordable care act