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Identification of patients undergoing chronic kidney replacement therapy in primary and secondary care data: validation study based on OpenSAFELY and UK Renal Registry.

Shalini SanthakumaranLouis FisherViyaasan MahalingasivamLucy PlumbEdward P K ParkerRetha SteenkampCaroline MortonAmir MehrkarSebastian BaconSue LyonRob Konstant-HamblingAlex J WalkerBrian MacKennaLaurie A TomlinsonDorothea Nitsch
Published in: BMJ medicine (2024)
Codes used in primary and secondary care data failed to identify a small proportion of prevalent patients receiving kidney replacement therapy. Codes also identified many patients who were not recipients of chronic kidney replacement therapy in UKRR data, particularly dialysis codes. Linkage with UKRR kidney replacement therapy data facilitated more accurate identification of incident and prevalent kidney replacement therapy cohorts for research into this vulnerable population. Poor coding has implications for any patient care (including eligibility for vaccination, resourcing, and health policy responses in future pandemics) that relies on accurate reporting of kidney replacement therapy in primary and secondary care data.
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