The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands.
Britt A E DhaenensSarah A van DijkWalter TaalD Christine NoordhoekAnna CoffeyStephen P McKennaRianne OostenbrinkPublished in: Journal of patient-reported outcomes (2024)
The Dutch PlexiQoL demonstrated excellent psychometric properties and can be reliably used to measure plexiform neurofibroma-related QoL in adults with NF1 in the Netherlands.