Clinical outcome measures and scoring systems used in prospective studies of port wine stains: A systematic review.
M Ingmar van RaathSandeep ChohanAlbert WolkerstorferChantal M A M van der HorstJacqueline LimpensXuan HuangBaoyue DingGert StormRené R W J van der HulstMichal HegerPublished in: PloS one (2020)
Clinical PWS outcomes are highly heterogeneous, which hampers study comparisons and meta-analyses. Consensus-based development of a core outcome-set would benefit future research and clinical practice, especially considering the lack of high-quality trials.