Health-related quality of life and lived experiences in males and females with thoracic aortic disease and their partners.
Carlijn G E ThijssenSilvy DekkerLidia Rianne BonsArjen L GökalpRobert M KaulingAnnemien E van den BoschJudith Anne Adriane Ellen CuypersElisabeth M W J UtensRoland R L van KimmenadeJohanna J M TakkenbergLeontien M H RoosEva GoossensJolien W Roos-HesselinkPublished in: Open heart (2020)
Healthcare professionals must be aware of HRQOL impairments in patients with TAD, particularly in younger females. Moreover, attention for partners is needed. Coping strategies and communication within the family were found to be important factors influencing psychological distress, and might be valuable leads for counselling and HRQOL improvement in this population.