Examining the Case for Palliative Care in Patients With Systemic Sclerosis.
Julie C McDonaldLaura J RossCarolyn J WicksJennifer A M PhilipPublished in: The Journal of rheumatology (2024)
Systemic sclerosis (SSc) is a complex, multiorgan disease that causes substantial and progressive symptoms and impairs quality of life. International guidelines recommend early, integrated palliative care for patients with advanced cardiopulmonary disease, such as heart failure and interstitial lung disease, as this care can improve patient, caregiver, and healthcare outcomes. In this article, we examine the potential need and role for palliative care in SSc. We propose that early, integrated palliative care could improve symptom control and quality of life and recommend a research agenda for palliative care in SSc to address the lack of evidence in this area.
Keyphrases
- palliative care
- systemic sclerosis
- interstitial lung disease
- advanced cancer
- healthcare
- heart failure
- rheumatoid arthritis
- multiple sclerosis
- type diabetes
- left ventricular
- metabolic syndrome
- atrial fibrillation
- depressive symptoms
- cardiac resynchronization therapy
- insulin resistance
- climate change
- human health
- acute heart failure