Integrative medicine for hypermobility spectrum disorders (HSD) and Ehlers-Danlos syndromes (EDS): a feasibility study.
Sara E GuedryBlake O LangleyKerry SchaeferDouglas A HanesPublished in: Disability and rehabilitation (2024)
Lifestyle and dietary interventions are relatively safe and well tolerated in the hypermobility spectrum disorder (HSD) and Ehlers-Danlos disorder (EDS) population.Participants in our 9-week integrative medicine program actively engaged in self-management of their condition and showed promising adherence to dietary and tracking requirements.Effective treatment of the intricacies and dynamics of these highly variable and clinically heterogeneous disorders may require a network of healthcare providers, integrative healthcare, as well as behavioral and psychosocial support.Dietary tracking through mobile apps might help promote self-efficacy and adherence to dietary changes.Symptom tracking might be an effective way for patients to track changes to their health and could provide valuable information for health professionals engaged in managing the disorders.
Keyphrases
- healthcare
- end stage renal disease
- spectrum disorder
- mental health
- public health
- network analysis
- chronic kidney disease
- health information
- metabolic syndrome
- weight loss
- randomized controlled trial
- peritoneal dialysis
- patient reported outcomes
- adipose tissue
- patient reported
- insulin resistance
- social media
- placebo controlled
- smoking cessation