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Sequential use of the Demoralization Scale in palliative care: feasibility, strain, and personal benefits of participation for patients at the end of life.

Sandra Stephanie MaiAnnika Renate VogtIrene SchmidtmannBernd Oliver MaierBernd WagnerMartina DvirMartin Weber
Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2020)
While the single use of the DS in PCUs seems justified in view of the possibility to detect severe demoralization with overall low to moderate strain and self-perceived helpfulness for patients, the feasibility of the sequential use of the DS has to be regarded critically. Our study undermines the complexity of assessing changes in self-reported psychological phenomena with end-of-life patients at a PCU. The most limiting factors for participating twice were that patients were either discharged from hospital or declined further participation.
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