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'A Meaningful Difference, but Not Ultimately the Difference I Would Want': A Mixed-Methods Approach to Explore and Benchmark Clinically Meaningful Changes in Aphasia Recovery.

Sally ZingelmanDominique Ann-Michele CadilhacJoosup KimMarissa StoneSam R HarveyCarolyn Anne UnsworthRobyn O'halloranDeborah HershKathryn MainstoneSarah J Wallace
Published in: Health expectations : an international journal of public participation in health care and health policy (2024)
This work is the result of engagement between people with lived experience of post-stroke aphasia, including people with aphasia, family members, clinicians and researchers. Engagement across the research cycle was sought to ensure that the research tasks were acceptable and easily understood by participants and that the outcomes of the study were relevant to the aphasia community. This engagement included the co-development of a plain English summary of the results. Advisors were remunerated in accordance with Health Consumers Queensland guidelines. Interview guides for clinicians were piloted by speech pathologists working in aphasia rehabilitation.
Keyphrases
  • social media
  • healthcare
  • mental health
  • palliative care
  • public health
  • health information
  • study protocol
  • randomized controlled trial
  • working memory
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  • risk assessment
  • adipose tissue