Vanessa L Merker (Vanessa Merker)

Scopus Author ID ORCID

Publication Activity (10 Years)

Years Active: 2015-2023
Publications (10 Years): 17

Top Venues

Clinical trials (London, England)

Neurology

American journal of medical genetics. Part A

Journal of general internal medicine

Edith Nourse Rogers Memorial Veterans Hospital

Boston University School of Public Health (PHD)

This page only lists publications with an associated author ORCID identifier.

Affiliation History

Edith Nourse Rogers Memorial Veterans Hospital Feb 19 2019

United States

Post-doctoral Fellow :: Center for Healthcare Organization and Implementation Research

Massachusetts General Hospital

United States

Senior Clinical Research Coordinator :: The Family Center for Neurofibromatosis

Education History

Boston University School of Public Health

United States

PHD

Brown University

United States

BSC

Publications

Vanessa L Merker, Heather L Thompson, Pamela L Wolters, Frank D Buono, Cynthia M Hingtgen, Tena Rosser, Belinda Barton, Carolina Barnett, Taylor Smith, Diana Haberkamp, Miranda L McManus, Andrea Baldwin, Irene P Moss, Claas Röhl, Staci Martin
Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials. Clinical trials (London, England) (2023)
Vanessa L Merker, Heather L Thompson, Pamela L Wolters, Frank D Buono, Cynthia M Hingtgen, Tena Rosser, Belinda Barton, Carolina Barnett, Taylor Smith, Diana Haberkamp, Miranda L McManus, Andrea Baldwin, Irene P Moss, Claas Röhl, Staci Martin
Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials. Clinical trials (London, England) 21 (1) (2023)
Vanessa L Merker, Andrea M Gross, Brigitte C Widemann, Scott R Plotkin
Advancing neurofibromatosis and schwannomatosis clinical trial design: Consensus recommendations from the Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration. Clinical trials (London, England) (2023)
Pamela L Wolters, Nour Al Ghriwati, Melissa Baker, Staci Martin, Dale Berg, Gregg Erickson, Barbara Franklin, Vanessa L Merker, Beverly Oberlander, Stephanie Reeve, Claas Rohl, Tena Rosser, Ana-Maria Vranceanu
Perspectives of adults with neurofibromatosis regarding the design of psychosocial trials: Results from an anonymous online survey. Clinical trials (London, England) (2023)
Vanessa L Merker, Heather L Thompson, Pamela L Wolters, Frank D Buono, Cynthia M Hingtgen, Tena Rosser, Belinda Barton, Carolina Barnett, Taylor Smith, Diana Haberkamp, Miranda L McManus, Andrea Baldwin, Irene P Moss, Claas Röhl, Staci Martin
Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials. Clinical trials (London, England) 21 (1) (2023)
Vanessa L Merker, Heather L Thompson, Pamela L Wolters, Frank D Buono, Cynthia M Hingtgen, Tena Rosser, Belinda Barton, Carolina Barnett, Taylor Smith, Diana Haberkamp, Miranda L McManus, Andrea Baldwin, Irene P Moss, Claas Röhl, Staci Martin
Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials. Clinical trials (London, England) 21 (1) (2023)
Vanessa L Merker, Heather L Thompson, Pamela L Wolters, Frank D Buono, Cynthia M Hingtgen, Tena Rosser, Belinda Barton, Carolina Barnett, Taylor Smith, Diana Haberkamp, Miranda L McManus, Andrea Baldwin, Irene P Moss, Claas Röhl, Staci Martin
Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials. Clinical trials (London, England) 21 (1) (2023)
Stephanie L Santoro, Sandra Baker, Jasmine M Blake, Maria J Cabrera, Kelli Caughman, Jeanhee Chung, Sarah Cullen, Maureen Gallagher, Kelsey Haugen, Roxanne Hoke-Chandler, Kavita Krell, Julius Maina, Diana McLuckie, Vanessa L Merker, Carie Michael, Kate O'Neill, Angeles Peña, Albert Pless, Dina Royal, Michelle Slape, Noemi Alice Spinazzi, Amy Torres, Carlos G Torres, Brian G Skotko
Views on the impact of the COVID-19 pandemic on health in people with Down syndrome from diverse backgrounds. American journal of medical genetics. Part A (2023)
Vanessa L Merker, Justeen K Hyde, Abigail Herbst, Amanda K Solch, David C Mohr, Lauren Gaj, Kelly Dvorin, Eileen M Dryden
Evaluating the Impacts of Patient Engagement on Health Services Research Teams: Lessons from the Veteran Consulting Network. Journal of general internal medicine 37 (Suppl 1) (2022)
Vanessa L Merker, Pamela Knight, Heather B Radtke, Kaleb Yohay, Nicole J Ullrich, Scott R Plotkin, Justin T Jordan
Awareness and agreement with neurofibromatosis care guidelines among U.S. neurofibromatosis specialists. Orphanet journal of rare diseases 17 (1) (2022)
K Ina Ly, Vanessa L Merker, Wenli Cai, Miriam A Bredella, Alona Muzikansky, Raquel D Thalheimer, Jennifer Liwei Da, Christina C Orr, Hamilton P Herr, Mary E Morris, Connie Y Chang, Gordon J Harris, Scott R Plotkin, Justin T Jordan
Ten-Year Follow-up of Internal Neurofibroma Growth Behavior in Adult Patients With Neurofibromatosis Type 1 Using Whole-Body MRI. Neurology (2022)
Vanessa L Merker, Bronwyn Slobogean, Justin T Jordan, Shannon Langmead, Mark Meterko, Martin P Charns, A Rani Elwy, Jaishri O Blakely, Scott R Plotkin
Understanding barriers to diagnosis in a rare, genetic disease: Delays and errors in diagnosing schwannomatosis. American journal of medical genetics. Part A 188 (9) (2022)
Pamela L Wolters, Ana-Maria Vranceanu, Heather L Thompson, Staci Martin, Vanessa L Merker, Andrea Baldwin, Carolina Barnett-Tapia, Kimberley S Koetsier, Cynthia M Hingtgen, Christopher J Funes, James H Tonsgard, Elizabeth K Schorry, Taryn Allen, Taylor Smith, Barbara Franklin, Stephanie Reeve, null null
Current Recommendations for Patient-Reported Outcome Measures Assessing Domains of Quality of Life in Neurofibromatosis Clinical Trials. Neurology 97 (7 Suppl 1) (2021)
Raquel D Thalheimer, Vanessa L Merker, K Ina Ly, Amanda Champlain, Jennifer Sawaya, Naomi L Askenazi, Hamilton P Herr, Jennifer L W Da, Justin T Jordan, Alona Muzikansky, Elizabeth Morehouse Pearce, Fernanda H Sakamoto, Jaishri O Blakeley, R Rox Anderson, Scott R Plotkin, null null
Validating Techniques for Measurement of Cutaneous Neurofibromas: Recommendations for Clinical Trials. Neurology 97 (7 Suppl 1) (2021)
Heather L Thompson, Ann Blanton, Barbara Franklin, Vanessa L Merker, Kevin H Franck, D Bradley Welling, null null
Patient Report of Hearing in Neurofibromatosis Type 2: Recommendations for Clinical Trials. Neurology 97 (7 Suppl 1) (2021)
Vanessa L Merker, Andrés J Lessing, Irene Moss, Maureen Hussey, Beverly Oberlander, Traceann Rose, Raquel Thalheimer, Tracy Wirtanen, Pamela L Wolters, Andrea M Gross, Scott R Plotkin, null null
Enhancing Neurofibromatosis Clinical Trial Outcome Measures Through Patient Engagement: Lessons From REiNS. Neurology 97 (7 Suppl 1) (2021)
Vanessa L Merker, Annie Dai, Heather B Radtke, Pamela Knight, Justin T Jordan, Scott R Plotkin
Increasing access to specialty care for rare diseases: a case study using a foundation sponsored clinic network for patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis. BMC health services research 18 (1) (2018)
Michal Horný, Jake R Morgan, Vanessa L Merker
Using Medical Claims for Policy Effectiveness Surveillance: Reimbursement and Utilization of Abdomen/Pelvis Computed Tomography Scans. Health services research 50 (6) (2015)

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Publication Activity (10 Years)

Top Topics

Top Venues

Vanessa L Merker (Vanessa Merker)