Reducing global health inequalities for a rare disorder: evaluating the international Prader-Willi Syndrome Organisation's Echo<sup>®</sup> programme.
Tanzil RujeedawaNora McNairneyShelly CordnerJames O'BrienGeorgina LoughnanAnthony J HollandPublished in: Orphanet journal of rare diseases (2022)
Families and professionals from countries with a range of expertise and services offered to people with PWS remained engaged throughout the ECHO programme, established networks of support and fostered the development of good practice.