A qualitative study investigating the meaning of participation to improve the measurement of this construct.

Astrid de Wind Allard J van der Beek Edwin J BoezemanRosalie SwennekerJohannes R Anema Angela G E M de Boer Heleen Beckerman Jan L Hoving Karen Nieuwenhuijsen Micky Scharn Mariska Stam Caroline B Terwee Monique H W Frings-Dresen Sietske J Tamminga

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2019)

Many participation subdomains were mentioned to be meaningful. As several of these subdomains are not covered in the PROMIS item bank, it may benefit from extension with new (patient-)reported subdomains of participation.

Keyphrases

patient reported
physical activity
palliative care
advanced cancer
psychometric properties