Patient-Reported Outcomes in Adult Idiopathic Inflammatory Myopathies.
Dana D DiRenzoClifton O BinghamChristopher A MecoliPublished in: Current rheumatology reports (2019)
Use of PROMs in myositis care and research is limited, although the importance of incorporation into routine practice and trials has become increasingly recognized. Several key domains/measures have been identified including the patient global assessment of disease activity, physical function as measured by the health assessment questionnaire-disability index (HAQ-DI), Short Form Health Survey-36 (SF-36), or the Patient-Reported Outcome Measurement Information System ® (PROMIS®) in adult IIM. Data are limited for these instruments concerning their reliability, content and construct validity, and responsiveness. Incorporation of the patient perspective into clinical care and research may be used to address the unmet/unaddressed needs of the patient living with myositis. Several ongoing projects aim to bring validated PROMs to the IIM community.
Keyphrases
- patient reported outcomes
- healthcare
- disease activity
- quality improvement
- case report
- rheumatoid arthritis
- systemic lupus erythematosus
- mental health
- primary care
- rheumatoid arthritis patients
- public health
- interstitial lung disease
- ankylosing spondylitis
- escherichia coli
- juvenile idiopathic arthritis
- electronic health record
- cross sectional
- risk assessment
- pain management
- clinical practice
- big data
- affordable care act
- psychometric properties
- patient reported
- myasthenia gravis
- health insurance