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Epilepsy-related stigma and attitudes: Systematic review of screening instruments and interventions - Report by the International League Against Epilepsy Task Force on Stigma in Epilepsy.

Joan K AustinGretchen BirbeckKaren ParkoNathalie JettePaula T FernandesPatricia BragaKirsten M FiestAmza AliJudith Helen CrossHanneke de BoerTarun DuaSheryl R HautAnn JacobyDiane L LorenzettiJanet MifsudSolomon L MoshéManjari TripathiSamuel WiebeNathalie Jetté
Published in: Epilepsia (2022)
Investigators in regions without instruments should consider translating and further developing existing instruments rather than initiating the development of new instruments. Very few stigma-reduction intervention studies for epilepsy have been conducted, study methodology in general was poor, and standardized instruments were rarely used to measure outcomes. To accelerate the development of effective epilepsy stigma-reduction interventions, a paradigm shift from disease-specific, siloed trials to collaborative, cross-disciplinary platforms based upon unified theories of stigma transcending individual conditions will be needed.
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