Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocol.

Casper G SchoemakerWineke ArmbrustJoost F SwartSebastiaan J VastertJorg van LoosdregtAnouk VerwoerdCaroline WhitingKatherine CowanWendy OlsderEls VersluisRens van VlietMarlous J FernhoutSanne L BookelmanJeannette CapponJ Merlijn van den BergEllen SchatorjéPetra C E Hissink MullerSylvia KamphuisJoke de BoerOtto T H M LelieveldJanjaap van der NetKarin R JongsmaAnnemiek van RensenChristine DeddingNico M Wulffraat

Published in: Pediatric rheumatology online journal (2018)

A JIA research agenda established through the JLA method and thus co-created by patients, carers and clinicians will inform researchers and research funders about the most important research questions for JIA. This will lead to research that really matters.

Keyphrases

juvenile idiopathic arthritis
end stage renal disease
ejection fraction
newly diagnosed
chronic kidney disease
study protocol
peritoneal dialysis
randomized controlled trial
prognostic factors
clinical trial
rheumatoid arthritis
open label
patient reported outcomes
global health