Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains.
Chatree Chai-AdisaksophaMark W SkinnerRandall CurtisNeil FrickMichael B NicholDeclan NooneBrian O'MahonyDavid PageJeffrey StonebrakerLehana ThabaneMark A CrowtherAlfonso IorioPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2018)
The results suggest that PROBE is a reliable tool to assess patient-reported outcomes for PWH and benchmark data in participants without bleeding disorder. The web-based questionnaire and the standard paper-based version can be used interchangeably.