Bridging the gap: A quality improvement project to implement psychosocial care standards into clinical practice in pediatric oncology.
Liesa Josephine Weiler-WichtlVerena Fohn-ErholdCarina SchneiderAgathe SchwarzingerKerstin KrottendorferThomas PletschkoVerena RosenmayrJohannes GojoAndreas PeyrlKarin DieckmannAlina Stefanie KollmannRita HanslIrene SlavcJonathan FriesMaximilian HopfgartnerUlrike LeissPublished in: Klinische Padiatrie (2023)
The iterative development of the "My Logbook" including local and international experts as well as the patient and practical perspective allow for the design of a process-oriented, consensus - and evidence-based tool directly translating the S3-Guideline into clinical practice. Feasibility and applicability are fostered through an iterative process of constant evaluation and adaptation of the tool by international experts and through the clinical experience gathered in the multi-centered pilot study. Furthermore, the systematic evaluation of the tool by patients, psychosocial, and interdisciplinary professionals enables the identification of persisting gaps between evidence-based standards and clinical practice, discrepancies between the various stakeholders' perspectives as well as regional differences in feasibility, thereby directly linking practice and research. The preliminary results emphasize that psychological support can be standardized, enabling an evaluation and optimization of psychosocial care which future studies need to assess in multicenter clinical randomized controlled trials.
Keyphrases
- clinical practice
- quality improvement
- healthcare
- palliative care
- mental health
- end stage renal disease
- randomized controlled trial
- chronic kidney disease
- ejection fraction
- newly diagnosed
- primary care
- image quality
- prognostic factors
- peritoneal dialysis
- pain management
- affordable care act
- clinical trial
- computed tomography
- young adults
- magnetic resonance imaging
- cross sectional
- depressive symptoms
- study protocol
- health insurance
- systematic review
- patient reported
- case control